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Veronica's Voice

Veronica's Voice is a charity established to provide support and education for children and families affected by chromosome disorders. This fund was established after the birth of Veronica Cummings who was diagnosed with Trisomy 13.

Trisomy 13 is a disorder of chromosomes which occurs in approximately 1 in 10,000 live born infants. Trisomy 13 is due to the presence of an extra #13 chromosome. Infants born with Trisomy 13 have a recognizable pattern of physical features and birth defects that often allow the health professional to make the diagnosis of the syndrome. About 60% of those born with Trisomy 13 experience cleft lip or palate and 80% will have a congenital heart defect. The major implications of Trisomy 13 involve an increased mortality in infancy, and developmental disability in older children. In addition, older infants can have visual difficulties, hearing loss, problems with lung development, reflux and feeding problems.

Although the first three months Veronica Cummings' life seemed like a blur of confusion, uncertainty and unnumbered doctor's visits, Veronica defied everyone's expectations. At three months doctors urged her parents to prepare for the worst, as Veronica's chance of living through each new day decreased. On the contrary, and to everyone's surprise, this strong little girl has held on even with the prognosis of being blind and mentally retarded.

Veronica, who was given a fatal diagnosis at birth, will celebrate her second birthday in December 2008. She will be surrounded by family and friends who, by tax-deductible donations, helped begin Veronica's Voice Fund.

Veronica's Voice Fund helps provide support and education for families who have been touched by one of these very special children living with a chromosome disorder.

Below is a list of upcoming events where you can, if interested, play your part in supporting Veronica's Voice.

  • Labor Day Parade: September 1st, Powhatan. We will sell bracelets, t-shirts, and baked goods. All profits will benefit the charity.
  • The Festival of the Grape: October 25th, Powhatan. We will be giving haircuts and selling t-shirts in our booth. Again, all proceeds will go to Veronica's Voice.
  • The Black Tie Dinner for Veronica: November 7th, Powhatan. The Mill at Fine Creek will host the event, which will feature a six course meal, jazz ensemble, raffle, and keynote speakers. For ticket inquiries, please contact Jessie.
For more information on Veronica's Voice or to donate, please contact us at (804) 317-3296 or email veronicasvoice@live.com.

Make checks payable to:
Veronica's Voice Fund
7110 Patterson Ave Suite D
Richmond Va, 23229